Showing posts with label awareness. Show all posts
Showing posts with label awareness. Show all posts

Friday, September 20, 2013

What the pink ribbon means to me


I want to begin this by saying that I would never speak for any other woman or man who has gone through treatment for breast cancer.  This opinion is mine and mine alone.  Everyone is different, and no two experiences are identical.  

With Pinktober coming full steam ahead around the corner, I want to come right out and say this: Pink Stinks.  I am sick and tired of the pink ribbon, Pinktober and massive amounts of pink-washing products that line the shelves year after year.  My dogs Boomer and Mal are more likely to start speaking in full sentences than these crap items will in any way contribute to a cure for cancer.

We think pink stinks, too!
For almost 10 years before my own diagnosis, I used to participate in Race for the Cure every year to honor my mother.  Several years, I raised a great deal of money for the Susan G. Komen Foundation.  I walked those 3 miles every year, believing that I was honoring my mother, who died of metastatic breast cancer.  I purchased several pink items when I saw that proceeds went to Komen.  Heck, I even went into my treatment believing that the pink ribbon meant something, that important change was afoot!  

After falling down the breast cancer rabbit hole, I came out viewing the pink ribbon in a completely different light. I see the pink ribbon now still as a symbol, but not as a symbol for anything positive.  I see the pink ribbon as a symbol of failure or as a way for companies to make a lot of money.  Instead of working toward a cure or heck, even a way to prevent this disease from affecting 1 in 8 women in their lifetime (source), the focus of the pink ribbon has veered violently off course.  Companies are slapping a pink ribbon on any product that they can with little to no transparency regarding where the money is going.

You know a push pin saved my grandmother's life! (Not really.)

Am I supposed to shoot my cancer?  The hell?  
Does anybody know if these items are free from carcinogens?  Anyone?  Anyone?
If you buy this, does any of the $58 go to a cause, or is this cause marketing at its best?

Last year, the New York Attorney General issued this release Issues Best Practices For Breast Cancer “Pink Ribbon” Campaigns, which made me stand up and applaud:  
While these campaigns have resulted in substantial donations, the Attorney General's review found that consumers often do not have sufficient information to understand how their purchases will benefit charity.
Doesn't that make your blood boil a tad or a lot or so much so you're about to have a rage stroke?  These companies are creating these lines of pink products and customers are just snapping them up, but a majority of these consumers have no idea where their money is going.  These companies are profiting obscene amounts of money, and meanwhile, so many (mostly) women are dying of metastatic breast cancer each year.  This cause marketing technique is a growing billion dollar industry, but where is the money going?  This has to change.  

The pink ribbon wants the general public to believe that breast cancer is this:

I can have "strength" on my feet!

Laces out, Dan.

Is this a campaign for breast cancer awareness.... or breasts?
Oh wait, this is me.  I think I was just happy to be up and moving.
The pink ribbon campaign wants you to forget that breast cancer is this:


It was only until last year that Komen actually featured a Stage 4 patient in its awareness ads, according to Peggy Orenstein's article entitled "Our Feel Good War on Breast Cancer."  (This article is a must-read, and I want everyone and their mother to read this.)  
It isn’t easy to face someone with metastatic disease, especially if you’ve had cancer yourself. Silberman’s trajectory is my worst fear; the night after we spoke, I was haunted by dreams of cancer’s return. Perhaps for that reason, metastatic patients are notably absent from pink-ribbon campaigns, rarely on the speaker’s podium at fund-raisers or races. Last October, for the first time, Komen featured a woman with Stage 4 disease in its awareness-month ads, but the wording carefully emphasized the positive: “Although, today, she has tumors in her bones, her liver and her lungs, Bridget still has hope.” (Bridget died earlier this month.)
If breast cancer awareness is ignoring the group of patients who will actually die from the disease, then where's the awareness?  You can't "bring awareness" to a disease and completely ignore the fact that women are dying from this disease.  If the pink ribbon ignores metastatic breast cancer patients, then it ignores women like my mother.  She died from this disease, and her story, along with all the other men and women who died from breast cancer, matters.  The pink ribbon either stands for all of us or none of us.

Here is an amazing quote from Gayle Sulik, the author of Pink Ribbon Blues.  
Taking a road less pink requires fundamental changes in the way we organize around breast cancer and in the questions we are willing to ask of ourselves, our families, our elected officials, our corporations, our medical system, our scientists, our media, and those who represent us in advocacy.
I really want anyone reading this to think before you pink every single time.  Will your dollars be better served at another organization, like Stand Up 2 Cancer or Gilda's Club (which provides emotional support to cancer patients and their loved ones) or any smaller organizations?  Please please please, I beg of you to put your dollars to good use and not to companies using cause-marketing to tug on your heart strings just to get you to buy some meaningless item.  The pink ribbon is an empty gesture.  You know what's not an empty gesture?  Fighting back.

Let's prevent other children from growing up without their mothers or fathers.  



Monday, September 16, 2013

Stop making breast cancer sexy

One common theme of Pinktober that drives me up the wall is the onslaught of sexxxxy ads for breast cancer awareness.  Instead of focusing on what actually happens to you once you have breast cancer (i.e. chemo, radiation, multiple surgeries, baldness), they focus on the potentially diseased body part.  Boobs, tits, funbags, sweater puppies.  It's gotten so bad that these ads aren't for breast cancer awareness, just awareness for breasts.



This is an actual advertisement for a benefit for the Susan G. Komen foundation last Pinktober.  When you look at the poster, you see a pair of young 20-something (or hell, late teen) breasts, and she doesn't even have a head!  Ignoring the problematic "save second base" title, she's a headless pair of perky, well-endowed tits!  WHERE IS HER HEAD?


So we're all supposed to rally together and raise money to save the perky, well-endowed tits in the world?    If we don't act now, all those beautiful bosoms you see on hot young things will be gone?  There's one problem, though.  The median age of women diagnosed with breast cancer is 61 years old.
Older women are much more likely to get breast cancer than younger women. From 2005-2009, the median age for a breast cancer diagnosis was 61 years of age. Approximately 0.0% were diagnosed under age 20; 1.8% between 20 and 34; 9.9% between 35 and 44; 22.5% between 45 and 54; 24.8% between 55 and 64; 20.2% between 65 and 74; 15.1% between 75 and 84; and 5.7% 85+ years of age.  
You know who's in her 60s and more likely to develop?  Your mom.  Your grandmother.  (Yes, young women, even those with great perky boobs, do get breast cancer, but I'm focusing on the majority here.)

This USA Today article spoke about how breast cancer patients are sick of the sexualization of breast cancer and included a quote from breast cancer blogger Chemobabe, aka Lani Horn

And beyond the chemo-induced nausea, diarrhea and vomiting, Horn says, long-term hormonal therapy can cause severe vaginal dryness, making intercourse too painful to contemplate. While many cancer survivors want more information about preserving their fertility and alleviating sexual side effects, very few get help, Horn says. 
Cancer "doesn't make you feel terribly sexy. Pain is not terribly sexy," Horn says. "There's a cruelty to this, when you're in danger of losing the very sexuality that they're selling."
You would think that hearing from those who have undergone breast cancer might garner some sympathy, maybe some comments like, "Ahh, I didn't think about it that way.  You know what, I do think these sexy campaigns are wrong."  Nah, a majority of the comments on the above article were as misogynistic and as full of bullshit as one might expect.


Seriously, Don?  You know who gives a rats ass?  WOMEN WHO HAVE GONE THROUGH BREAST CANCER.  I read this comment, and I swear my blood pressure just went through the roof, and I came within moments of an actual rage stroke.  This guy seriously read, or half-ass read, an article about breast cancer patients despising all the sexiness in the name of awareness, and he still responded, "Who gives a rats ass."  In the same thread, this gem of a human being decided to weigh in and show all those women who have had their breasts removed who's the boss.

Not erasing this guy's last name because fuck this guy, that's why.
Sure, that's exactly what I do, you jackass.  Instead of living my life after breast cancer, I have dedicated what time I have on this Earth to complain about women's breasts.  I'm a breast-envying bitch.  Yep, that sounds right.  


This next comment made me laugh, but not in the funny-haha way, more like the oh-my-god-people-like-him-exist-why-god-why.  When Komen turned down free money from porn, he gave his money to another "worthy cause."


When women who have had breast cancer dared to speak, exclaiming, "This has gotten out of hand," we are told that we are "idiots," "judgmental," and "arrogant."  Oh man, where was this guy when I had a third of my breast and five lymph nodes removed, or when I started choking to death because I was severely allergic to Taxotere, or going through radiation, or when I had to come to the decision to have a bilateral mastectomy when my year check-up came back suspicious?  According to this shining example of philanthropy, I should just remain quiet and suffer the indignities of having companies try to make a buck off breast cancer by any means necessary?  

Awareness for the sake of awareness is not helpful.  Awareness is an empty word if it's not backed up by any action.  I would gather that most people don't know shit about breast cancer.  Do most know that there are multiple types of breast cancer, all which require different treatment plans: her2 positive, ER positive, triple negative, inflammatory breast cancer, and so on.  All that these awareness campaigns do is just make ourselves feel better about not doing anything proactive.  

I'd be down for awareness if it meant the public learned that very little money goes to actual research, that 30 percent of early-stagers go on to develop metastatic breast cancer, that breast cancer takes away pretty much every aspect of yourself that you find sexy, or that men get breast cancer too.


Amen.